Blessed Assurance: Success Despite the Odds

by Jacquie Lewis-Kemp, Author & Health Coach for Living life with diabetes and organ transplants, rather than limiting life because of them.

Browsing Posts published by Jacquie Lewis-Kemp

Brandie Ivy lived on dialysis and has been listed for a kidney transplant for more than 9 years.  During that time she she attended college and married the love of her life. 

This young marriage has always had to consider the constraints of dialysis–hours of time each day, devoted simply to dialysis, nephrology dietary restrictrictions,  constant testing, fluid restrictions, registering with  doctors and a transplant center in the area they planned to travel to that she would be in the area, packing dialysis supplies, . . . and the list continued. 

 

 

On August 12, 2011 all of

that changed!!!!!!!!!!

 

Brandy received her long awaited kidney transplant! Now she and her (not so new, but I bet the relationship will feel new) husband will live a life that they only dreamed of!

The blessing and miracle of organ transplant is not just a medical one. In fact it is a very complicated medical miracle and spiritual experience.  Think about it, the organ that once grew in someone else’s body is surgically implanted and now functions in another person’s body. It is a medical miracle that only Christ can guide.

As you can imagine, transplant is a very expensive procedure, there are the costs associated with procuring the organ, preparing the organ for transplant, administration of the transplant process, the actual transplant procedure and post operative care which continues for life.

Insurance pays for most of the expenses, however there is a significant portion left unpaid that the transplant recipient has to bare, including an anti rejection drug regimen or the rest of this young woman’s life.

That is why on Saturday, September 24, 2011 at Tabernacle Missionary Baptist Church there will be a fundraiser and I will be the keynote speaker.  Brandy asks that I bring a message that teaches the importance of organ donation, particularly in the African American community.  We will use our examples of life restored through organ transplantation to encourage others to become organ donors.

Tabernacle Missionary Baptist Church is located at  2080 W. Grand Blvd. Detroit, MI 48210.  Tickets for this event are $30 and can be purchased by calling 313 598 2537 and the tickets will be delivered. Checks can be made payable to Brandie Ivy. You may also purchase tickets  through paypal.com by using the email address brandieivy@gmail.com.

I hope you will come out and support

this courageous young woman.

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Hurricanes Irene and Katrina, terrorist attacks like 911, earthquakes and other disasters have us contemplating emergency preparedness.  What items would you pack up to move out of harm’s way? In the case of a sudden emergency, what items would you grab? Even if there is a fire in your home and you have a quick moment to grab one thing, what would it be?

If you wait to answer these questions when you need to, chances are you won’t grab the right things and you will regret that you didn’t think through these  uestions pre-need and not at-need.  For people with diabetes, organ transplants or other chronic conditions,  the question is critical and the first item is a given–medication,  items 2-10 may vary.

 On September 11, 2001, a good friend of mine was traveling from the Midwest to the West coast.  He called  from his layover in Minneapolis to tell me that the FAA was considering grounding all aircraft.  He had been recently diagnosed with Type 2 diabetes.  So as I listened to him complain about airport hotels and poor restaurant choices, my Type 1 brain immediately began to calculate what I would need. What concerned me was that since he had homes in both locations, he likely wasn’t carrying several days of medication. I interrupted his complaining and asked, “How much medication do you have”? He answered, “Oh, I don’t know.” I asked him to pull it out and count how many days worth of medicine he had.  I listened as he opened pill bottles and counted, and he was comfortable that he had at least a couple weeks of medication. Funny thing is that as he was counting pills, I was thinking of next steps if he didn’t have enough medication.  Time was critical because he would need to call his pharmacist (during business hours in another time zone) to transfer his prescriptions to a local pharmacy, in order to fill them.

Here’s a quick list of items to consider:

Quick Evacuation

 

  1.  Medication
  2.  Medication
  3.  Medication
  4.  Critical / Portable equipment

 

Hours to Evacuate or Move to a limited space in the home

  1. Everything from the quick evacuation, plus
  2. Medical supplies such as glucose tabs, glucometer & supplies
  3. Durable medical equipment (dialysis supplies, heart monitors, etc., breathing machines)
  4. Physician and pharmacy phone numbers
  5. CASH
  6. Water
  7. Non perishable food
  8. Flashlight
  9. Battery operated radio

 

Some of these items can be stored in
one location, so that only a few will need to be gathered in the case of an
emergency. No one wants to imagine such disaster, but it is better to be
prepared and not need it, than to need it and not be prepared.

 

 

 

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Join me at the 2011 International Fuller Woman Expo next

Saturday, September 10, from 11 amuntil 6 pm.

 

W e are pleased to welcome back talk show host, comedian and

actress Ms. Kim Coles as our keynote speaker.  She is best

known for her portrayal of Sinclair on the hit television show,

“Living Single”, a role that garnered her 4 NAACP Image award

nominations. Ms. Coles is the host of the popular game show

“Pay it Forward” on BET, making her the 1st African American

Woman to ever host a primetime game show.

Keynote Speaker-Kim Coles

Kim is ever evolving. In January, she let go of her trademark braids she has had for

20 years to go all natural! This decision to reveal her natural locks tranformed her

in ways of thinking and being. She will speak about her new found freedom that has

made her appreciate who she is even more and how you can find the courage to love

your authentic self !


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Join walkers from all over the state of Michigan to support the National Kidney Foundation in its quest to advocate for patients in all stages of chronic kidney disease.

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The Affordable Care Act, signed and passed in March of last year, holds many benefits for those both pre- and post-transplant. While you may already be familiar with some of the Act’s immediate benefits, it’s in your interest to understand how long-term initiatives may improve your healthcare coverage in the future.

General benefits to look for

If you have been denied insurance due to a pre-existing condition—such as a history of transplant or kidney disease—the Act is creating ways to help1,2:

It removes lifetime coverage limits and sets more reasonable annual limits

As of September 2010, it eliminated pre-existing conditions as a reason for denying coverage to, or setting high premiums on, individuals up to 19 years of age

Effective 2014, it will eliminate pre-existing conditions as a reason for denying coverage to, or setting high premiums on, individuals 19 years and older

Your options until 20143

Most significantly, the Act has created the Pre-existing Condition Insurance Plan (PCIP)—which may provide you affordable, non–income-based coverage if you’ve been uninsured or denied insurance for at least 6 months due to a pre-existing condition.4

Standard PCIP benefits include primary, specialty, and preventative care; hospitalization services; and prescription drug coverage.4 Depending on where you live, these benefits may either be managed by the federal government or the state.4 Click the map for benefits, coverage rates, and enrollment details specific to your state of residence5:

If your PCIP program is run by the state, you will be offered a single plan by that state; but if it is run by the federal government, you will have the option of selecting from the following 3 plans6-8:

Be sure to read the 2011 PCIP Brochure and the PCIP Benefits Summary before discussing your options with a financial coordinator or PCIP representative.

Your access to coverage is critical to your transplant health. With the help of the Affordable Care Act, you are now many steps closer to ensuring a successful journey ahead.

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Anthony Anderson, co star of upcoming movie Scream 4, and star of Hustle & Flow, Kangaroo Jack, Kingdom Come and detective on NBC’s Law & Order, has Type 2 diabetes and is in Atlanta for Eli Lilly’s Fearless African Americans Connected and Empowered (F.A.C.E.) program. I got a chance to interview the national spokesperson for outreach to African Americans affected by diabetes. Sign up on my website to read and hear my upcoming interview at www.jlewiskemp.com.

In the meantime, listen to Anthony on Late Night with Jimmy Fallon.

Anthony Anderson

 

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MY SWEET LIFE: Successful Women with Diabetes

by Beverly. Adler, PhD, CDE

and friends

 

This book is a collection of life stories – each chapter written by a highly respected successful woman with diabetes.  This group of diverse women share their stories how they find balance between managing their careers and/or family AND managing their diabetes.

MY SWEET LIFE is compiled by Dr. Beverly S. Adler who is also one of those women.  “Dr. Bev” as she is better known, is a clinical psychologist and Certified Diabetes Educator in private practice, specializing treating patients with diabetes and also has had Type 1 Diabetes for 36 years.  All those years ago when she was diagnosed, there were no role models with diabetes for her. This book is geared for women with diabetes who need role models who can inspire them. The book  is written for the newly diagnosed woman with diabetes who is overwhelmed with her diagnosis.  Or, for the woman who has had diabetes for a while, but can also benefit from uplifting, inspirational stories to encourage and motivate self-care (especially if they already are trying to cope with some complications).

She is joined by 27 contributing authors who are all women of exceptional accomplishments! Each story is unique and heartwarming, as these very special women share their triumph over diabetes. The reader can learn how the women’s experiences with diabetes helped to shape them into who they are today. The forward to the book is written by Nicole Johnson – Miss. America 1999. The theme running through the book is that “diabetes is a blessing in disguise.”

 

 

This book is inspirational, motivational, and uplifting!

 

___________________________________________________________________________

 

Contributing authors (in alphabetical order):

Beverly S. Adler, PhD, CDE

Judith Jones Ambrosini

Brandy Barnes, MSW

Lorraine Brooks, MPH

Fran Carpentier

Sheri R. Colberg-Ochs, PhD

Deanna Glick

Riva Greenberg

Carol Grafford, RD, CDE

*Nicole Johnson (*Writing the Forward to the book)

Sally Joy

Zippora Karz

Kelli Kuehne

Kelly Kunik

Jacquie Lewis-Kemp

Joan McGinnis, RN, MSN, CDE

Laura Menninger (aka “The Glucose Goddess”)

Jennifer Nash, PhD

Vanessa Nemeth, MS, MA

Alexis Pollak

Kyrra Richards

Lisa Ritchie

Christina Rowlandson, MS

Mari Ruddy, MA

Cherise Shockley

Kerri Morrone Sparling

Natalie Strand, MD

Amy Tenderich, MA

Heartha Whitlow

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A few weeks ago I talked about the old days and the diabetic exchange system diet. It was up to the diabetic to understand and almost commit to memory the exchange system. It has been at least 30 years since this was the way the diabetic diet was managed, but I still remember that 5 cashews equals a fat exchange. Although people believe nuts are high in protein (and they are a source of some protein), they are higher in fat than protein. The diabetic diet is now managed by counting carbohydrate content. As an old timer, I feel something is lost in the nutritional value of the meal when counting carbohydrates only. In this new jack swing system of carbohydrate counting it doesn’t matter if you eat mostly from one food group as long as it meets the carbohydrate count. Man does not live by bread alone, but if he’s carbohydrate counting, who’s to say he can’t live by beer alone?

And who did away with Tes-Tape™? Remember before the days of glucometers and home blood testing, that gray tape dispenser with yellow tape that we had to pee on before each meal? It was ¼ inch wide and you cut off a piece about 2 inches long to pee on to test your urine sugar. It was the closest thing we had to estimate (I mean really guess) at what our blood sugar was. I mean really, how accurately could urine sugar indicate blood sugar?

It wasn’t until I was in high school that I participated in a study of one of the first glucometers. I carried with me to college a 1 ½ foot long by 8 inch wide by 4 inch deep, 40 pound machine with manual gages like an old airplane cockpit. With it was synthetic blood vials used to calibrate the machine whenever it was moved or unplugged; strips, and steel lancets designed to poke a hole in the finger that almost required stitches to stop the bleeding. Test results were complete 2 minutes after the poke and the results were displayed by the hand on the gage stopping on one of four hashes: 0, 120, 240 and 480. If the hand landed between the hashes, you had to estimate the best you could.  

Boy how technology has improved! Today glucometers fit in your pocket, and even come with an ap to record blood sugar and suggest meals or exercise.  Even beyond the snapshot picture that the glucometer provides is another advancement called the Continuous Glucose Monitor (CGM). If the glucometer is a snapshot of what your blood sugar is at that moment, the CGM is a video camera of how your blood sugar varies throughout the day. This is valuable information as the diabetic can better schedule and plan rather than prepare for just in case.

Change resulting in progress is good! What are your memories of the good ol days?

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Growing children, even high schoolers often have a difficult time managing glucose levels because of the influx of hormones, gym class, academic stress, after school sports and the dietary make up of school lunches.

According to the American Diabetes Association, “Federal laws that protect children with diabetes include Section 504 of the Rehabilitation Act of 1973, the Individuals with Disabilities Education Act of 1991 (originally the Education for All Handicapped Children Act of 1975), and
the Americans with Disabilities Act. Under these laws, diabetes has been considered to be a disability, and it is illegal for schools and/or day care centers to discriminate against children with disabilities. In addition, any school that receives federal funding or any facility considered open to the public must reasonably accommodate the special needs of children with diabetes.”
Indeed, federal law requires an individualized assessment of any child with diabetes. The required accommodations should be provided within the child’s usual school setting with as little disruption to the school’s and the child’s routine as possible and allowing the child full participation in all school activities.

The Juvenile Diabetes Research Foundation (JDRF) encourages the use of a 504 Plan or Individualized Education Plan (IEP) so that medical instructions are clear for educators when needed. You can find an example plan at http://www.childrenwithdiabetes.com/504/.

For more information with the opportunity to ask questions, the JDRF sponsors a back to school conference:

 

JDRF’s Back-to-School Conference

No Fee to Attend

Everything you need to know about creating

a safe learning environment for students with
diabetes

For parents/caregivers, school administrators
& staff including teachers,

support personnel (lunch room aides and bus
drivers), and school nurses!

August 9, 2011

2011 Club Venetian, 29310 John R Road, Madison
Heights, MI

August 16, 2011

Holiday Inn French Quarter, 10630 Fremont Pike,
Perrysburg, OH

August 23, 2011

Walnut Hills Country Club, 2874 E. Lake Lansing Rd,
East Lansing, MI

Program Hours (each site): 6:00PM-8:00PM

Students with type 1 diabetes need a strong
support network at school to help them manage their diabetes.

JDRF is here to help!

Hear presentations from Certified Diabetes Educators:

Diabetes Basics • Educational tools and templates • The ‘team’ approach to keeping students safe

Receive information from JDRF:

School Advisory Toolkit • Health Care Providers Toolkit • Service & Support Programs

Visit the diabetes vendors in the exhibit area:

Roche Diagnostics, Medtronic, Solara Medical Supplies, Nova Biomedical, Animas, Novo Nordisk

Questions? Contact Denise Pentescu at dpentescu@jdrf.org or 248-936-1284

JDRF’s Back-to-School
Registration Form

Fax to: 248-355-1188 or
Online at: www.JDRFcares.org/ConferenceRegistration

(If you email your registration, include all the
information requested below in the text field)

I will attend:
____ Aug. 9 – Metro Detroit/Madison Heights ____ Aug. 16 – Perrysburg, OH ___ Aug. 23 – Lansing

Contact Name_________________________________________Title ______________________

Email __________________________________________ Phone_________________________

School Name (if
school employee) _________________________________________________________________

Address _______________________________________________________________________

City/State/Zip ____________________________________________________________________

Free Return form no later than one week prior to event date to reserve your seat!  Free

Register
On-Line at www.JDRFcares.org/ConferenceRegistration

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