Blessed Assurance: Success Despite the Odds

by Jacquie Lewis-Kemp, Author & Health Coach for Living life with diabetes and organ transplants, rather than limiting life because of them.

Browsing Posts tagged jacquie lewis-kemp

From the Huffington Post:

Facebook Organ Donor Initiative

Prompts 100,000 Users To Select New

Option

 

By MIKE STOBBE 05/ 2/12 05:57 PM ET AP

ATLANTA — Thousands of Facebook users have signed up to be organ donors this week, thanks to a new feature on the social networking site that makes it easier to register.

The new option was announced Tuesday by Facebook CEO Mark Zuckerberg as a way to boost the number of potential organ donors. By the end of the day, 6,000 people had enrolled through 22 state registries, according to Donate Life America, which promotes donations and is working with Facebook. On a normal day, those states together see less than 400 sign up.

The response “dwarfs any past organ donation initiative,” said David Fleming, chief executive of Donate Life America, in a statement.

The Facebook feature allows users to share their decision to be an organ donor on the website. More than 100,000 did that by Tuesday night, according to Facebook, which is working with Fleming’s group to encourage Facebook users to also officially register as donors with their state.

A link on the site connects to online donor registries. At least 22,000 people had followed that link as of Wednesday afternoon. Information from 22 states indicates that a third or more of them filled out the form to register, said Donate Life America spokeswoman Aisha Michel.

California – where Facebook is headquartered – reported startling results. About 70 people register online as organ donors each day. But in the 24 hours after Zuckerberg’s announcement, about 3,900 signed up.

“We’re just thankful we have this opportunity to bring more people into the process,” said Bryan Stewart, a spokesman for OneLegacy, which coordinates transplants in the Los Angeles area.

“We’re looking forward to seeing how long this activity lasts, and at what level,” he added.

Facebook, a social network site founded in 2004, has 526 million daily users around the world. It was Facebook’s idea to add the option, after Zuckerberg took a personal interest in the issue, Michel said. The feature is available in the U.S. and the United Kingdom.

As with some personal information on Facebook, organ donor status can be kept private or shared publicly or only with friends.

More than 114,000 Americans are currently on waiting lists for transplants of kidneys, livers, hearts and other organs, according to United Network for Organ Sharing (UNOS), the organization that runs the nation’s transplant system. More than 6,600 died last year waiting for an organ.

According to UNOS, 43 percent of adults in the U.S. are registered as donors. Organs can only be used though under certain circumstances, such as when someone dies from a major head injury and a ventilator can keep the organs viable. Less than 1 percent of U.S. deaths annually are under such circumstances. And sometimes the opportunity is lost because family members didn’t know about the person’s wishes on organ donation.

The Facebook feature “is a unique opportunity for people to make their decision known,” UNOS Executive Director Walter Graham, said on a statement.

Most people register as organ donors when they get a driver’s licenses, but about 2 percent sign up through online registries. Both represent legal consent for adults. For children who want to be donors, parental consent is still required.

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Unexpected Blessings

In my chapter of Victorious Living for Women, I talk about how we can never predict exactly where our blessings will come from. In fact I detail how my difficult period of kidney failure and dialysis was, at that time, the worst thing that had ever happened to me. My kidney transplant after seven months of dialysis then became the reason I was eligible for a pancreas transplant. And what a pancreas transplant meant was that I no longer had to follow a diabetes regimen.

As I reflected back to the time of my diabetes diagnosis at the age of seven, I recall that my grandfather and pastor told me that we would just pray that [diabetes] away.  You can imagine how my parents felt about my grandfather instilling hope into their daughter that they were talking to physicians about how to prepare me for a lifetime of diabetes management. While both my parents were Christian, they didn’t want me to be confused and spend my life waiting for a miraculous cure one day.

I didn’t spend my life waiting for that cure, and instead pushed forward to live a normal life. It wasn’t until after my pancreas transplant that I reminded my grandmother of my grandfather [now deceased]’s prayer. Could it be that he did pray it away? Why do we think that when we pray, God is somehow on the clock? That He has a timeframe in which to answer our prayer. Not only does he have a timeframe, but a manner in which He should do it. “To pray my diabetes away”, somehow seemed to me and my parents for God to perform some miracle and I would somehow be cured. A simple prong on the head and diabetes would be gone!

Who would imagine that He would use physicians and technology and achieve essentially a cure?

It is with that realization that I am careful not to predict and plan where my acts of kindness go, because I never know where my blessings will come from. In other words, I don’t decide to do nice things for people that I expect a return of good fortune. The idea of paying it forward is not finding a trading partner or deciding who is worthy to receive your gift. It is passing on a gift to someone in need or deserving, without expecting anything in return.

I recently had such an opportunity. At a Writer’s Expo, a young woman, before performing a song told the story of her intent to relocate to Georgia in order to donate a kidney to a long time friend of hers. What’s the chance that I was in that room of authors–both fiction and nonfiction–to hear this story. I was in a place to tell my story and experiences of being a two-time organ transplant recipient to someone who really needed to understand the process. I was stunned, even paralyzed to listen to her. I knew immediately that God had placed me in that place to hear her story and provide information and guidance for this transplant procedure. I wasn’t even sure why I attended this Expo; it wasn’t necessarily an event that I thought I would sell many books. But I received a blessing beyond what selling several books could provide: The blessing of knowing that my story mattered.

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Blessed Assurance: Success Despite the Odds

CALENDAR OF EVENTS
04/14/12 Writer’s Expo, The Upper Room, Detroit, MI
04/21/12 Signing Books, God’s World 2-4 PM                 Seven Mile and Schafer in Detroit, MI
04/28/12 Walking with Jackie’s Crew to cure MS              at Covington School, Bloomfield Hills, MI
05/01/12 Advocating diabetes and kidney education programs at the American Diabetes Association and National Kidney Foundation’s        Diabetes & Kidney Day in Lansing, MI
05/12/12 Signing books at Antioch Baptist Church  in Pontiac, MI
8/4-8/12 Signing books at the Bass Mollett booth at the   National Funeral Directors & Morticians Association convention in Las Vegas, NV
09/29/12 University of Michigan Transplant Center’s    Vita Redita Gala & Charity Auction  at THE BIG HOUSE! in Ann Arbor, MI
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Register to become an organ donor online or at your local Secretary of State office.

Don’t take your organs with you . . .

heaven knows we need them here!

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Andrea Boccelli

Did you know that Andrea Bocelli is blind? You know Bocelli, the opera singer known as the fourth tenor and disciple of Lucciano Pavaratti. I didn’t know that, and just the other day I watched the PBS fundraiser that featured Tony Bennett’s Duets II CD and Bocelli is one of the vocal collaborators. No, I’m no opera buff, but I enjoy classical music while writing and like to understand the music.

To listen to Bocelli’s classically trained voice is romantic bliss, even as my fingers type along the keyboard. It doesn’t surprise me that he is blind however, for there have been several other great singers and musicians who are blind—Stevie Wonder, Diane Shuur, Ray Charles, Jose Feliciano just to name a few. It’s just that when a person perfects their craft, you imagine that they used all of their resources to achieve it. How does one understand beauty without sight?

Therein lies the complexity of perfection. Perhaps it is not the quantity of resources or specific resources that reach perfection, but the desire to reach perfection.

I don’t believe it ends with music and blindness. Chronic illness does lots of things to us—makes us tired, susceptible to other illnesses and infection which create another list of problems in addition to the ones we already deal with on a daily basis. It can appear to be a downward spiral if we don’t keep that saying in mind, “When one door closes, another opens”. Bocelli can’t read music and so he overcompensates by listening. In other words, because kidney failure or a heart condition forces you to change direction, it doesn’t mean that you cannot perfect another craft; maybe even something that you really wanted, rather than what you’ve been doing.

So how do you make that transition from the closed to the open door? Here are some suggestions

  1. 1.     Recall what some of the things you’ve always wanted to do are, but somehow never got around to them. Perhaps school took you in a different direction—accounting instead of guitar; maybe the man (or woman) of your dreams came along and instead of pursuing your dream, you were pursued; maybe starting a family got in the way of the perfect career. Think back to what got you up without an alarm clock.

 

  1. 2.     What do you enjoy doing most? Optimally we are already living the dream! Maybe you have already made a career of what you love most. And if you have, great, figure out how to do it in harmony with the medical deficits that you may now have. But if you weren’t living the dream, really reach back and imagine what makes you most happy.

 

  1. 3.     What do you need this new venture to do? Is it a hobby or a job? If you are already independently wealthy, perhaps you don’t need to make what you love earn a living. And even in that case, a hobby that you love and can perfect is important to self worth. We all need a project, or something that adds to our value. But if you are one of the 99% of us, and need that project to also earn a living, then you need a plan for that to happen.

 

 

  1. 4.     How can you make money doing it? Explore all the ways people earn a living doing what you love to do. Imagine yourself doing it and what you would need in the way of support, materials, time and routine.

 

  1. 5.     Finally, say it out loud so that others will hold you accountable, practice and perfect it!

 

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Perhaps one of the most difficult aspects of chronic kidney disease is the diet.  After you get past figuring out how you will schedule dialysis and what you need to do in order to have energy and strength, you find that diet plays a large role in making that happen.

Salt Restriction

It is common knowledge that too much salt isn’t good for you. However for dialysis patients high, sodium foods impact a dialysis patient immediately. Already plagued with water retention, something as simple as a slice of pizza or a bag of potato chips can cause dialysis patients severe ankle swelling or swelling in the abdomen causing shortness of breath.
Excess sodium also causes blood pressure to rise and cause headaches, mental dullness and a loss of energy. At its worse, hypertension (high blood pressure) can incite cardiac complications.

Phosphorus Restrictions

Who ever thought that potatoes would be something restricted on a diet? But they are a very special case when it comes to kidney disease. The kidneys filter waste from the blood and it is expelled through the urine. When your kidneys don’t function properly, one of the chemicals that don’t get filtered is phosphorus. Doctors prescribe phosphorus binders which make it so that phosphorus can be cleared in the stool rather than urine. However, the best option is to limit consumption of high phosphorus foods like nuts, organ meats, chocolate, cola drinks and beer.

Potassium Restrictions

An orange on the restricted list? For the same reason that phosphorus builds up in the blood stream for dialysis patients, potassium also builds up in the blood stream. Excess potassium can cause problems such as weakness, muscle cramps, tiredness, irregular heartbeat and, worst of all, heart attack. Potassium is found mostly in fruits, vegetables and dairy products. Certain fruits and vegetables are very high in potassium while others are lower. However, eating a large amount of a low-potassium food can cause potassium to add up to dangerous levels. Be aware that most foods contain some potassium — meat, poultry, bread, pasta — so it can add up. Butter, margarine and oils are the only foods that are potassium free.
Refer to the charts below from DaVita Dialysis, as simple reminders of which foods should be restricted and some suggested alternatives.

High potassium

High phosphorus

Double jeopardy —High potassium and high phosphorus

Fruits

Meat

Milk

Vegetables

Poultry

Dairy products

Fish and seafood

Nuts and seeds

Wild game

Chocolate

Eggs

Whole grain products

Dried beans and peas

Check the list below to see if you are eating any of the double jeopardy foods on the left. Using some of the alternatives listed on the right will help improve your chances of keeping potassium and phosphorus under control.

Double Jeopardy Foods (High Potassium & High Phosphorus)

Alternatives

Cheese

Vegan rella cheese, low-fat cottage cheese, sprinkle of parmesan cheese (use very small amounts of extra sharp cheeses for the maximum flavor)

Chocolate

Desserts made with lemon or apple, white cake, rice-crispy treats

Cream Soup

Broth-based soups made with pureed vegetables or make soups with Mocha Mix® nondairy creamer or Rich’s Coffee Rich®

Dried beans and peas

Green beans, wax beans

Ice Cream

Mocha Mix® frozen dessert, sorbet, sherbet, popsicles

Milk

Mocha Mix® nondairy creamer, Coffeemate®, Rich’s Coffee Rich®, Rice Dream® original, unenriched rice beverage

Nuts

Low-salt snack foods including pretzels,tortilla chips, popcorn, crackers, Sun Chips®

Peanut butter

Low-fat cream cheese, jam or fruit spread

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African Americans are disproportionately affected by diabetes and hypertension which make up more than 2/3 of all cases of kidney failure. Understand these risks and take charge of your lifestyle to prevent kidney disease.

Further, share what you’ve learned with family, friends, your neighborhood and your congegation.

 

 

 

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Chronic diseases or conditions like diabetes, multiple sclerosis, hypoglycemia, asthma, kidney disease, hypertension, heart disease and transplant living all require a regimen that requires strict adherence. Not following these regimens or staying within the guidelines can cause serious problems, long term complications or even sudden death. Almost all of these conditions require a special diet or dietary restrictions.  Some of them can be controlled with diet alone. Others also require medicines and test procedures.

This can seem overwhelming for someone first diagnosed with a chronic illness, and it can continue if the patient doesn’t develop a regimen to accommodate the medicine schedule, the dietary restrictions and timing, and exercise requirements. The restrictions that a chronic condition requires can feel overwhelmingly restrictive, but consider the alternative. If a diabetic doesn’t develop a regimen to consistently take medication, follow a low glycemic diet with the prescribed carbohydrate restrictions and exercise as suggested, then blood sugars can dip too low and cause a severe hypoglycemic reaction resulting in loss of consciousness or even death. Other chronic conditions can result in similar serious conditions as well as sudden death.  This is why a regimen to prevent these severe reactions is important.

How do you manage diabetes? How do you eat an elephant? One bite at a time!

In other words, you break down what needs to happen and put it up against your usual daily schedule.

  1. 1. List the things that must be done for proper management of your condition. In the case of diabetes, you would list your dietary requirements and restrictions, your medicine doses and times, your test and exercise requirements/suggestions.

  2. 2. List your normal daily activities and job travel and/or timing requirements. For instance if you work 8am until 5pm, and you travel 10%  of the time, typically Tuesday through Friday.

  3. 3. Now blend the lists by figuring out what the breakfast requirements translate into as far as a meal; what you will eat for lunch (whether purchased at a restaurant or packed in a  brown bag lunch) and how you will complete dinner requirements. When you will test and if you will gets some midday exercise walking outside or to lunch.

  4. 4. You should also write down when you will test during these hours and at home.

  5. 5. Finally look over the list of requirements and make sure that you determine what supplies you need to make this regimen work. For instance, if carrying blood testing supplies and the machine is not convenient, then you might want to consider keeping an  extra set at work in a locker or in your desk. If that means keeping medicine at work as well, make sure to consider the storage requirements of the medication. For instance, insulin doesn’t need to be refrigerated; however it shouldn’t be kept in direct sunlight either.

  6. 6. Schedule time for exercise so that it is not an afterthought that is not done regularly.

The key is to make sure that what your condition requires, you make available and convenient so that it is easy to be compliant to your doctor’s orders.

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Soul Food has been the blame for Type 2 diabetes and uncontrolled Type 1 diabetes for years.  One of the reasons that it has not been quickly eliminated from the diet of African Americans is because of the social role these foods have played throughout history.  Much like the movie “Soul Food”, the Sunday Diner and family contribution to its preparation is what has historically kept families together.  Therefore for the sake of the African American family, we must find a way to uphold this ritual and at the same time reverse the effects it has on diabetes and heart disease.

Many of the foods are in fact healthy and nutrient filled at the start.  It is often the preparation styles that rid the foods of their cancer fighting and sometimes blood pressure lowering nutrients.  Adding excess salt and fat also cause some dishes to be unhealthy. With a few slight changes, soul food can become not just good to you, but good for you.

Low-Sodium Selections

Traditional soul food is high in sodium or salt. Replace
table salt with sea salt. This type of salt has a strong flavor, and you won’t
need to use too much of it to get the flavor you desire. Select foods that say
“reduced” or “low-sodium” on the labels. Include dried or fresh herbs and spices
in your favorite soul food recipes to add flavor without adding
salt.

 

Low-Fat Diet Options

Traditional soul foods can be high in unhealthy fat,
such as saturated and trans fat. Soulfoodandsoutherncooking.com suggests
replacing traditional soul food ham hock with smoked turkey and using turkey
bacon instead of pork bacon. Breading and frying meat and poultry are typical
soul food preparations. Select a lean cut of beef or skinless chicken breast,
which are low in saturated fat. Coat the protein with flour, egg wash and
crushed-up corn-flake cereal. You can add your favorite seasonings such as sea
salt or dried herbs. Spray a cookie sheet with a nonstick spray and bake the
meat until done. This cooking method cuts out the fat from battering and
frying.

Balanced Carbohydrate and Veggie Options

Soul foods include starchy vegetables such as corn,
potatoes and peas. You can still enjoy these foods while having diabetes, but
you need to balance them with some nonstarchy vegetables. Enjoy steamed green
leafy vegetables alongside your starchy veggies. Prepare collard greens, spinach
or kale in a hot saute pan with a splash of red wine vinegar. Drizzle the cooked
greens with heart-healthy olive oil, and sprinkle with sea salt to finish.
Black-eyed peas are a staple of soul food. Pair these simple carbohydrates with
complex carbohydrates such as brown or wild rice. Simple carbs break down
quickly and may cause a spike in your blood sugar. Pairing them with complex
carbs may help to stabilize your blood sugar since foods with complex carbs take
longer to break down.

Replacements in Baked Goods

When baking biscuits or cornbread, replace fatty
buttermilk with a reduced-fat milk. Whipped cream is a delicious addition to
homemade apple pie. Replace half the heavy whipping cream with reduced-fat milk
to shave some fat. Use 1 percent or skim milk in recipes that traditionally call
for whole milk.

Different Fats and Oils

Fill your diet with heart-healthy fats, such as
monounsaturated, polyunsaturated and omega fatty acids. Use healthy oils such as
olive, vegetable and corn oil in your cooking. Replace butter with margarine.
Include some nuts that are high in monounsaturated fats, such as almonds,
cashews and walnuts.

Read more: http://www.livestrong.com/article/328360-soul-food-diet-for-diabetics/#ixzz1lf3mTmIx

 

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